About Us

Message from our Founder

In 1994, eight local African-American physicians met with the PA Secretary of Health at my home where we committed ourselves to developing a program to address the needs of the sickle cell patients (SCD) in our region.

We were motivated by the recent death of a sixteen year old girl who had had surgery for an acute gall bladder attack. She survived the surgery but succumbed in the immediate post-operative period.

As we reviewed the situation we recognized that there were a host of problems that SCD patients faced. We decided that the limited knowledge, resources and skills for managing SCD patients would no longer be tolerated.

Your continued support is critical to our ability to continue and expand our client base and service diversity.

Thank you,
Donald W. Spigner, MD,
SCPASCC Founder and Board Member

 

Sickle Cell Council Serves 26 PA Counties:

Adams, Bedford, Blair, Bradford, Centre, Clinton, Columbia, Cumberland, Dauphin, Franklin, Fulton, Huntingdon, Juniata, Lancaster, Lebanon, Lycoming, Mifflin, Montour, Northumberland, Perry, Potter, Snyder, Sullivan, Tioga, Union, and York

Sickle Cell Commemorative Stamp

Sickle Cell Disease Commemorative Stamp

Through the efforts of Dr. Donald W. Spigner, MD and the Board of Directors of South Central Pennsylvania Sickle Cell Council, the idea for the development of the Sickle Cell Disease commemorative stamp was born.

The unveiling of the sickle cell commemorative postage stamp occurred September 2003 in Los Angeles, California and the stamp was issued for sale September 29, 2004 at the national conference of the Sickle Cell Disease Association of America, Inc. (SCDAA) in Atlanta, Georgia. We are very proud!


Mission

To partner with the health community to provide support to individuals, families and caregivers affected by Sickle Cell Disease and Trait, in 26 PA Counties, through advocacy, public awareness, intervention and education.

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Mission

To partner with the health community to provide support to clients, families and caregivers affected by Sickle Cell Disease and Trait, in 26 PA Counties, through advocacy, public awareness, intervention and education.

The South Central PA Sickle Cell Council (SCPASCC) is a 501(c)(3) non profit organization that provides education and health services to persons with Sickle Cell Disease and their families in today’s global environment. SCPASCC and Penn State Milton S. Hershey Medical Center partner to deliver comprehensive medical and psychosocial services.

Sickle Cell Disease (SCD) is common in many ethnic groups: African, Arab, Black, Caucasian, Greek, Indian, Italian, and Latino.

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History

Donald W. Spigner, MD coordinated a meeting at his home, where all committed themselves to developing a program to address the needs of persons with sickle cell disease in Central Pennsylvania.

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History

Donald W. Spigner, MD coordinated a meeting at his home, where all committed themselves to developing a program to address the needs of persons with sickle cell disease in Central Pennsylvania. The physicians were motivated by the recent death of a sixteen (16) year old girl, at the time, that had surgery for an acute gall bladder attack. The 16 year old girl survived the surgery but succumbed in the immediate post-operative period. As the situation was reviewed by the eight physicians, they recognized that there were, a host of problems that persons with sickle cell disease (SCD) faced. The group decided that the limited knowledge, resources and skills of the medical community and others for managing persons with sickle cell disease would no longer be tolerated.

The South Central Pennsylvania Sickle Cell Council (SCPASCC) was incorporated in November of 1994 and is a 501©(3) non profit organization that provides education and health services to persons with Sickle Cell Disease (SCD) and Sickle Cell Trait (SCT) and their families. Since September 2004, SCPASCC partners with the Sickle Cell Clinic of the Pediatric Hematology/Oncology Division of the Penn State Milton S. Hershey Medical Center, Hershey, PA to deliver comprehensive services. The Sickle Cell Clinic operates two days per month directed by James Powell, MD, Assistant Professor, Division of Pediatric Hematology/Oncology.

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Staff

Joseph Robinson

Joseph Robinson

About Joseph

JOSEPH ROBINSON, JR. – Executive Director

Mr. Robinson joined the Council in January 2009. Prior to his appointment he took an early retirement in 2006 from his position as a senior division manager for the Commonwealth of Pennsylvania, to focus on developing a leadership development consultancy. Over more than two decades with the Pennsylvania Department of Transportation, Robinson honed his managerial, mentoring, and communication skills, and was certified as a quality manager through the American Society for Quality. He authored "7 Leadership Imperatives from a Wildman" (Judson Press, 2008) and has trained over 3,000 in his leadership model.

As executive director, he leads the organization in their mission to provide support services to families affected by sickle cell disease through advocacy, education and awareness. He earned his BA degree from the University of Virginia and is an active member of Alpha Phi Alpha Fraternity, Inc.

Mr. Robinson also lends his expertise as executive director of the Martin Luther King Jr. Leadership Development Institute, a community think-tank and leadership development resource.

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Debra Bizzard

About Debra

DEBRA BIZZARD, BS – Social Worker

Ms. Bizzard has a BS degree in Applied Behavioral Science and is pursuing an MPA in Healthcare Management and Policy, both are from Penn State University.

She has over fifteen years experience in social services. Her responsibilities have included administrative oversight, assessment and case management of clients in need of a broad spectrum of mental health services, substance abuse intervention, vocational/ educational programs, housing, and criminal justice involvement.

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Judy Chandler

About Judy

JUDY CHANDLER – Coordinator of Volunteers, Development, Events

Ms. Chandler joined the Council in 2011 and lends her interpersonal and written communications skills to manage the daily administrative functions of the office.

She spends a great deal of her time coordinating Volunteers and developing Special Events for SCPASCC. She is ever watchful for new fundraising and endowment opportunities for the Council.

Prior to joining the Council, using her skills in sales, marketing, and development, Judy founded and owned a small business. Later, her desire to help people deal with the ups and downs of life resulted in the creation and hosting of an AM Talk Radio Show.

She earned her Associate's Degree in Business Studies from Harrisburg Area Community College. In 1998, she was the first recipient of, Mr. Ted Lick's Most Outstanding Entrepreneur Award.

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