Client Services

Testing and Consultation

We can provide FREE testing for Sickle Cell Trait (SCT), and FREE follow-up testing in the event the initial test result is positive Sickle Cell Disease (SCD) or SCT. SCT means that you carry a gene for SCD. Most people with SCT tend to do well, but, usually do NOT know they have SCT unless they have been tested for it. Couples planning to have children should know their SCT status because, if both parents have it, each pregnancy would have a 1-in-4 chance of producing a child with SCD.

Psychosocial Assessment

A comprehensive psychosocial assessment is given to all prospective clients during the intake visit to develop an appropriate service plan based on the individual’s strengths and challenges. Clients undergo an annual follow-up assessment each year.

Research indicates that sickle cell patients experience severe psychosocial distress in the areas of employment and finances, sleeping, eating, and performance of normal daily activities. Plus, fear and anxiety regarding body deterioration, and lack of assertiveness in social relationships were, also, found. And, the findings suggest that depression may be a common problem among sickle cell patients.

Social Work Case Management

Our Social Worker collaborates with clients, and parents of clients, to develop a complete support service plan, which involves assessing the needs of the individual, or family, as well as, connecting clients with services that can help address their needs. Such services may include assistance with housing/shelter, food stamps, and bus vouchers, as well as mental health, physical health and employment services. Our Social Worker may, also, collaborate with multidisciplinary treatment teams including medical doctors, nurses and psychiatrists in order to advocate for needed medical care on the client's behalf.

Individual Counseling

Individual counseling is a process through which clients meet one-on-one with our Social Worker in a safe, caring, and confidential environment - to explore their thoughts, feelings, beliefs, or behaviors, work through challenges, identify aspects of their lives that they would like to change, help with understanding themselves and others better, setting personal goals, and working toward desired outcome.

Advocacy & Educational Resources

As a support service organization, we assist our client-families with personalized support, advocacy, and SCD-related educational materials. We offer emotional support and help find resources, as needed, to enhance, and/or, maintain their health and well-being. We also assist with filling out paperwork.

Support Groups

I Am Not Alone • Can You Hear Me Now?
New Beginnings • Summer Camp • Client Family Day

SUPPORT GROUPS are a great resource for people to maintain control over their lives, to give and take from wisdom and experience that comes from living with a devastating illness like Sickle Cell Disease.

We offer support groups to help adult, and youth clients, their families, and caregivers develop tools to regain a sense of control over their lives.

Learn More About Support Groups