September is National Sickle Cell Disease Awareness Month, and it’s an opportunity for us all to come together, raise awareness, and support those impacted by this disease. This month is more than just a series of events—it’s a time to reflect on the lives affected by Sickle Cell Disease (SCD) and the crucial role that awareness, research, and community support play in making a difference.
At SCPASCC, we’re committed to taking meaningful steps in the fight against Sickle Cell, and we kicked things off in a big way with our SCPASCC Walk for a Cure on September 7th. From the Capitol Complex to City Island, participants came together for a day of unity, energy, and most importantly—hope. 🙌 The turnout was incredible, and we’re grateful for everyone who walked with us to show their support. But this is just the beginning!
Why Raising Awareness for Sickle Cell Disease is So Important
Sickle Cell Disease affects approximately 100,000 people in the United States, predominantly in African American and Latino communities. For African Americans, Sickle Cell Disease occurs in 1 out of every 365 births. Additionally, about 1 in 13 African American children are born with the Sickle Cell trait. Sickle Cell trait is also present in 1 in 100 Latino children and 1 in 333 white children.
Not understanding the importance of tracking Sickle Cell trait is one of the reasons we see disproportionate burdens placed on certain populations. Sickle Cell trait doesn’t necessarily result in the disease, but when both parents carry the trait, their children have a much higher risk of developing Sickle Cell Disease. This highlights the critical need for education, early screening, and ongoing support within these communities.
National Sickle Cell Awareness Month helps bridge the gap between the community and the healthcare resources available. By educating the public, we can encourage early screening, promote blood donations, and push for more funding toward research and better treatment options. With more awareness comes better outcomes for those affected by Sickle Cell, and we can make a real difference together.
The Exciting Events Happening This Month
We’ve got some exciting events lined up this September that we’d love for you to be a part of. Each one plays a crucial role in raising awareness and fostering a sense of community around Sickle Cell Disease.
Walnut Street Bridge Lighting (September 17th - 23rd)
Starting on September 17th, the Walnut Street Bridge will be glowing bright red in honor of Sickle Cell Awareness. This beautiful display will last until September 23rd, and we encourage you to stop by and experience it for yourself. Whether you take a walk across or simply admire the view from afar, this lighting is a symbolic way to show solidarity with those affected by Sickle Cell Disease. 🌉
Press Conference at the Capitol (September 18th)
On September 18th, from 10 AM to 11 AM, we’ll be hosting a Press Conference at the Capitol Rotunda alongside the Pennsylvania Legislative Black Caucus. This event is an important opportunity for us to bring attention to the challenges faced by individuals living with Sickle Cell and to advocate for better resources and support. We invite everyone to come and listen to our leaders speak about the future of Sickle Cell advocacy and what we can do as a community to push forward.
Blood Drive at St. Paul’s Missionary Baptist Church (September 27th)
We’re also facing a blood shortage in Central PA, and we need your help. On September 27th, from 10 AM to 3 PM, we’re partnering with the American Red Cross to host a Blood Drive at St. Paul’s Missionary Baptist Church. Blood donations are life-saving for individuals living with Sickle Cell Disease, and your contribution could make a direct impact. Every pint of blood matters, especially in helping those who are facing severe Sickle Cell complications.
📍 Location: 1201 N 17th St, Harrisburg, PA 17103
How You Can Get Involved
We invite everyone to take part in our National Sickle Cell Month events! Whether you’re admiring the Walnut Street Bridge Lighting, attending the Press Conference at the Capitol, or donating blood at St. Paul’s Missionary Baptist Church, your support makes a huge impact. The more we come together, the more we can continue pushing forward in the fight against Sickle Cell Disease.
For full event details and ways to participate, visit our website here: Schedule Blood Donation Now!
Thank you for standing with us this month and beyond. Together, we can create change.
Sources:
• Centers for Disease Control and Prevention (CDC)
• National Institutes of Health (NIH)
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